I haven’t written about my MS for some time now but I think today is a good time to come clean about it.
I was diagnosed in March of 2008. I have been doing my best at keeping things under control with diet, exercise, physiotherapy, no alcohol since 2009, regular sleep pattern and general clean lifestyle. It has all helped to keep me upright for the past 13 years.
I have turned a corner in the last 12 months. I’m struggling more now than I ever have. I’m still fighting. I will not give up but it is getting more difficult to do what I am use to doing.
I have been dealt a body fatigue like nothing I have ever experienced. It’s not a “nap” kind of fatigue. It is with my physical body and my stamina. I entered this new phase of fatigue over the past 6 months. When the pandemic started I was quite energetic but things have gradually changed. I am working with my naturopathic doctor on different strategies to improve my energy. I have to keep trying.
I am still doing physiotherapy two mornings a week. I had way more endurance a year ago then I do now but I will not give up. The exercising keeps me limber and more flexible. As I lose the lower body strength, I want to keep up my upper body strength. My therapist works with my energy levels on a given day to keep my workouts within my range of energy. It is so important that I keep this up even though it takes me 2 hours to recover afterwards. It is a guarantee that I will be really fatigued the rest of the day after physio. But it is a small price to pay for the benefits I get from the exercise…… the discomfort of post-exercise fatigue is worth it.
I will not let this fatigue keep me from golfing….no, no, no. Thankfully when I am on the Paragolfer out on the golf course, I forget about the fatigue and I am pretty good. The paragolfer keeps me safe and I don’t have to exert too much physical energy to be out there. Swinging the club happens every 5 or 10 minutes so it is not a constant. The paragolfer stands me up, I swing the club and sit back down. I don’t have to walk so that is not an issue. I must add, my golf game has improved big time, as I have been playing 4 days a week during the entire pandemic. This four hours of fresh air, laughter with our friends, twisting and turning of my body, being out in nature….it is MY HAPPY PLACE. I hope I never have to give this activity up. I actually have more energy post golf then I do the rest of the time so I thrive on my golf time.
Along with the body fatigue I’m living with, I also have “brain fog” from time to time. I’m just not as sharp as I like to be with my writing and researching. I’m still living a healthy lifestyle but my heart is not into staying on the leading edge as it use to be. This “brain fog” and “fatigue” is making my interest in writing on my website wain and my concentration is just not there. Having said that……I have decided to take a break from posting on my website for the foreseeable future.
It’s been a great place for me to express my emotions, frustrations, new discoveries, gratitude, healthy tid bits, nutrition information, recipes, poetry, opinions, tributes to people I love, the odd political post and more. I have been able to save my website in a file as some of my readers think I should put my posts into a book and publish it. If I had the energy for that I may consider it, but really, I did this website to keep me on the healthy lifestyle and to inspire others to strive for better health too. I know it has inspired others as I have received many great comments and emails from readers. That was my goal….”TO INSPIRE HEALTHY LIVING”. Achieved.
So I thank you all for your continued readership of my site. I am sad to be “packing it in” but I have been thinking about it for a very long time now. The decision came to me recently when I received a renewal notice of my “Go Daddy” account. It is time for me to renew for another 2 years or not. I opted for not renewing.
So farewell from www.marciamundell.com.
Stay well…..live your best life!