There’s No Place Like HOME!

Your home is your sanctuary….your temple.

Home is where you can really be yourself.

I think we all agree on that statement “there’s no place like home”.

We are currently shopping and planning for our new home, and I look so forward to making it our sanctuary.  Right now we are living in our motor home, and it’s a comfortable place to call home.   We are patiently waiting for our new house to be complete.   That’s probably why I chose this topic to write about today.  I’m so excited to get in our new home knowing it will be furnished and set up to make managing my disability a little easier.

I hate to keep bringing up my Multiple Sclerosis but for the purpose of this post about “home” it is a huge part of my story.    Living with Secondary Progressive Multiple Sclerosis is truly robbing me of a “normal life”.  I’m being robbed of my ability to get around outside of home without aids such as a scooter, a walker and in the very near future…an electric wheelchair.  It’s why “home” means so much to me.

When I’m home, I’m more at ease and can be myself.  I don’t have to pretend that I’m okay, strong and able.  At home I am “me”.  When I’m out and about, I find myself having to push my way through the outing…whatever it may be.  Not to say that I don’t love getting out.  I really do like to go out.  It’s just that I have to mentally and physically prepare for outings now.  When I’m at home, I can just sit when I need to, nap when I need or want to, bumble and fumble my way around.

It’s a really good thing that I enjoy sitting, reading or binge watching Netflix because this is what I will be doing as the MS continues to rob me of my abilities.

Something that always comes up when I’m out and about is people ask me what is wrong with me.  “Why am I on a scooter”?  or why I have a walker to get to the table in a restaurant.  People see me and I look healthy in every way except I can’t walk.  So people assume I’ve had hip replacement, or a skiing accident, or something temporary.  When I tell them I have MS, I always get that gut punch reaction…. “oh, so sorry to hear that”, “you poor thing, I know someone who had MS”.  Sometimes people talk in the past tense about their friend or family member they knew who had MS which send chills down my spine.  To me it sounds like their acquaintance has passed on…making me think “did they die from having MS”.  It’s just uncomfortable.  But I understand why people ask.  It is what it is……

When I’m home I don’t have to deal with that stuff.  I can just be myself.  Sometimes, I even forget that I’m living with this disease as I’m comfortable in my reclining chair sipping my tea, enjoying “The Crown” on Netflix. (an example)…and just being myself.  At home I can live my days based on my energy and mood.  Trust me, with MS, you do have fluctuating energy and moods.  It just goes with the territory.  At home, I’m totally at ease.

It’s easy to get around at home.  I know what to expect, I know where everything is, I don’t have surprises to deal with.  It’s predictable, it’s safe, and it’s mine (ours).  There’s no traffic, no chaos, no real schedule, no drama other than on tv,

Home is where we can shut out the noise of the world at large and become peaceful and calm.



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